Useful links and resources for the bleeding disorders community of healthcare professionals, physicians, parents and patients.
The WFH work to ensure every person—including those living with hemophilia and von Willebrand disease (VWD), those with rare factor deficiencies, and women with bleeding disorders—have access to world-class care and recognition of their condition.
For people who are travelling to other countries and as a directory of hemophilia treaters around the world. You can use the various search features to get a list of all the centres in a country you will be visiting or find an address of an organization or a person.
Genetic Counselling
Genetic Counselling is the process through which knowledge about the genetic aspects of illnesses is shared by trained professionals with those who are at an increased risk or either having a heritable disorder or of passing it on to their unborn offspring.
Medic Alert Bracelets
In an emergency when you cannot speak for yourself, MedicAlert® identification bracelets alert emergency personnel to a member’s primary health conditions, medications, allergies or implanted medical devices, as well as notifying them of specific advance directions.
Kids Health from Nemours
Doctor-reviewed advice - covering physical, emotional, and behavioral topics - that aims to give families the tools and confidence to make the best health choices. Easy-to-follow articles, slideshows, videos, and health tools designed to help families learn and grow.
Reach for a Dream
The power of dreams; we encourage children to use their dreams to fight life-threatening illnesses and, we try, to make these dreams come true. Our vision is to give hope to children fighting life-threatening illnesses through the fulfillment of their dreams.
