Ever wondered how safe it is to exercise when you have haemophilia? A recent German study tracked over 1,000 real-world physical activity sessions and found that most patients with haemophilia A (PwH) are doing more than staying active, they’re doing it wisely.
What the Study Found
This 12-month observational study followed 23 people with moderate to severe haemophilia A. They recorded every physical activity they did whether it was walking, swimming, biking or even alpine skiing and their factor VIII (FVIII) levels at the start of each session using a digital tool.
Key highlights:
Most activities were low-risk (Cat I) like walking or swimming (78.6%).
Moderate-risk activities (Cat II) like biking and horseback riding made up 19.1%.
High-risk activities (Cat III) like skateboarding and skiing were rare but possible with higher FVIII levels.
Only 3 out of 1,011 sessions led to a bleed, and two of those happened during home workouts with FVIII levels near 1%.
14% of sessions were done with FVIII levels ≤3%, indicating some PwH are still taking part in activities even when factor levels are very low.
Why It Matters
The study reinforces what many already know: regular, safe movement is not only possible for people with haemophilia, it’s beneficial. But it also shows us the risk: physical activity must be paired with smart treatment planning.
- Knowing your FVIII levels before activity can help you:
- Prevent joint bleeds
- Maintain long-term joint health
- Improve quality of life
- Build confidence in physical fitness
This is where tools like MicroHealth become vital.
How MicroHealth Can Help
MicroHealth is a free mobile and web app designed for people with bleeding disorders. It allows you to:
- Track and log treatments
- Record bleeds and pain episodes
- Connect with your healthcare provider or treatment centre
- Upload images
- Share your data with your treatment centre in real-time
With its easy-to-use interface, Microhealth helps you stay in control of your condition and make informed choices about your physical activity.
Get Started with MicroHealth
Here’s how to download and create an account:
Go to www.microhealth.com
Click “Download App” or search “MicroHealth” in your app store (iOS or Android).
Create an account using your email or mobile number.
Choose your condition (e.g. Haemophilia A) and connect with your healthcare provider or treatment centre.
Start logging your treatments, activities, and more!
For a complete overview of how Microhealth works and real patient stories, visit the site or join our SAHF WhatsApp Community for regular updates.
Your activity matters. Your data matters. Your safety matters.
Logging and tracking with purpose especially before physical activity, is a game changer. Whether you’re walking or skiing, planning accordingly can mean the difference between thriving and risking injury.
