Since the World Federation of Hemophilia (WFH) launched the Global VWD Call to Action in 2018, the visibility and awareness of von Willebrand Disease (VWD) have increased globally, and more patients have been identified. Still, there remain gaps in the education, recognition, and diagnosis of VWD worldwide. Identification is key to increasing the visibility of VWD and improving the lives of those living with the condition. Once people with von Willebrand Disease have been identified and diagnosed, the work begins to provide them with access to adequate care and treatment.
The WFH Global VWD Call to Action is an act of solidarity between WFH national member organizations (NMOs) to recognize VWD and break the stigma and isolation that can exist for people living with the condition. It promotes adequate care and treatment for people with von Willebrand Disease (VWD). This is critically important—because with proper care and treatment, people living with VWD can have a much better quality of life.
Around the globe, 47 NMOs have already signed on to the Global VWD Call to Action. Here are some examples of the valuable work that is happening around the world.
The South African Haemophilia Foundation has raised awareness for VWD through social media, a leaflet and a poster targeting women with bleeding disorders and VWD. They have also shared information about the condition in their newsletter and included VWD in their press release for World Hemophilia Day 2020.